Scientific research is expensive. The development of a gene therapy against NCL will cost approx. $ 9 million.

 

By means of targeted public relations the NCL-Foundation aims at sensitising the public to rare diseases and at obtaining donations.

 

We strive to achieve this, for example, by initiating publications on the disease itself, by distributing classic donation letters, holding information booths at professional conventions and organising charity events.

 

The following pages offer an outline of the scope of our events and projects and especially of sponsors and service groups that have been of great help so far.

 

We appreciate your donations, ideas and support for charity events.

 

Contact person fundraising / public relations: anna.prahm@ncl-stiftung.de