The aim of the non-profit foundation, founded in 2002, is to employ at least one qualified scientist to fight the very rare, fatal metabolic disease Neuronal Ceroid Lipofuscinoses through the following objectives:
to increase public awareness of NCL in order to promote the early diagnosis of the disease
to build an NCL-network of medical specialists to collect and co-ordinate existing national and international expertise
to initiate research and development concerning possible cures. Experts shall be brought together in order to utilize their particular expertise in the fight against NCL
to initiate concrete NCL research projects, for example, by creating research fellowships or other initiatives.
You can help us rid children of the fatal disease by making a small charitable donation. Or, help raise awareness of NCL in your community by hosting (or attending!) a fundraising event in your community, school, or company.
You can find a short profile of the NCL-Foundation here
You can find our Annual Report 2011 here
Older Annual Reports you may find in our Download Center.