Early detection of this disease is critical in being able to deliver measures to delay symptoms in a timely manner. Therefore the NCL Foundation initiated and organised and lectures for various groups of doctors and medical specialists. The foundation is also represented by speakers at national conventions. Alongside doctors, students as well as pupils and teachers are also important partners of the foundation in the fight against childhood dementia and NCL.
As a neutral authority, the NCL Foundation is building an extensive network of specialist doctors and scientists, in order to combine and co-ordinate inter (national) knowledge. It successfully brings together specialists from different disciplines to apply their knowledge to NCL. This reduces duplicated research and enables new co-operation. To this end, the foundation organises an annual . Furthermore the foundation promotes investigation into the biochemical and physiological reasons behind the origin of the disease, as this is crucial in the development of treatment.
Research and promotion are closely linked. The foundation initiated specific NCL research projects, e.g. through the promotion of stipends or the introduction of experienced partners for new co-operation. In 2009 the foundation presented the for the first time, with a prize in excess of 50,000 Euros. The fourth and fifth research prizes were remunerated with 100,000 Euros. The money is directly invested into national and international research and postdoctoral projects. The prize honours the engagement to new ideas in the investigation of NCL.
The NCL Foundation carries the DZI Spendensiegel(German Central Institute for Social Issues Seal of Approval), which proves that we treat all money entrusted to us with care and responsibility. 253 organisations worldwide carry this seal, 174 in Germany and 7 in Hamburg. The NCL Foundation is one of three foundations in Hamburg who can carry the seal.
We voluntarily commit to fulfil the DZI standards and to achieve the highest standards of quality, so that you can be sure that your donations will be used directly and meaningfully.