Childhood Dementia (Neuronal Ceroid Lipofuscinosis, or NCL) is a metabolic disease that has hardly been researched to date. It is incurable, progresses
inexorably and leads to early death.
Affected children go blind, suffer from epilepsy and increasingly lose their cognitive and motoric abilities until they die - usually before the age of 30. As the NCL Foundation, we are committed to national and international research funding in order to give children affected by NCL a prospect of previously missing therapeutic and curative approaches.
You can find more information about our activities in 2021 in our annual report.
NCL is the most common form of childhood dementia. It is still fatal and incurable. Learn more about the course and the main indications of this cruel disease.»
Our primary goal is to find a cure for NCL. We invest in research, inform medics and try to shred more light on this rare disease.»
Our small team is situated in Hamburg. We are supported by our foundation board, scientific advisory council and many others.»
Would you like to support us? Besides donating, there are a lot more ways you can help.»
You will find a regularly updated list of the latest scientific publications on the different forms of NCL here.