For a future without childhood dementia

Childhood Dementia (neuronal ceroid lipofuscinosis, or NCL) is a deadly metabolic disease that has barely been researched until now. Affected children lose their eyesight, suffer from epileptic seizures and steadily lose all mental and physical capabilities. Usually they die before the age of 30. We, the NCL Foundation, are dedicated to promoting national and international research in order to give affected children hope that new treatment and healing approaches will be found.

Annual report 2019

You can find more information about our activities in 2019 in our annual report.

NCL Annual report 2019
Annual report_2019.pdf
Adobe Acrobat Dokument 5.3 MB

About NCL

NCL is the most common form of childhood dementia. It is still fatal and incurable. Learn more about the course and the main indications of this cruel disease.»

What we do

Our primary goal is to find a cure for NCL. We invest in research, inform medics and try to  shred more light on this rare disease.»

Who we are

Our small team is situated in Hamburg. We are supported by our foundation board, scientific advisory council and many others.»

How to help

Would you like to support us? Besides donating, there are a lot more ways you can help.»