Childhood Dementia (neuronal ceroid lipofuscinosis, or NCL) is a deadly metabolic disease that has barely been researched until now. Affected children lose their eyesight, suffer from epileptic seizures and steadily lose all mental and physical capabilities. Usually they die before the age of 30. We, the NCL Foundation, are dedicated to promoting national and international research in order to give affected children hope that new treatment and healing approaches will be found.
NCL is the most common form of childhood dementia. It is still fatal and incurable. Learn more about the course and the main indications of this cruel disease.»
Our primary goal is to find a cure for NCL. We invest in research, inform medics and try to shred more light on this rare disease.»
Our small team is situated in Hamburg. We are supported by our foundation board, scientific advisory council and many others.»
Would you like to support us? Besides donating, there are a lot more ways you can help.»